With permissions of Misfit108, I have renamed this topic to "Main topic", because it has become a bit of a main topic. Having a main topic may also make some discussions easier.
Btw last week, I have emailed the author of a demodex study about the possibility of this being a new form of demodicosis, and replied with:
The best way to confirm the suspect diagnosis of demodicosis is to do a skin biopsy or to conduct a reflectance confocal microscopy examination. Soolantra is not only anacaricide but can also suppuress inflammatory reactions.
So the positive effects that most of us have while on a treatment that has Soolantra in it, doesn't mean that demodex is causing the problems. (Something we already knew.) But the long lasting effects that the two success story users experienced, may indeed suggest that demodex is the cause.
Although in my case, I likely have a lower amount of demodex than what would fall under the category of demodicosis (which is more like >5 mites per square cm) (unless the method that I use isn't precise enough). But I still have my aim/theory at demodex.
Last Friday, I went to a new dermatologist (my third derm, and 5th doctor). He owns a large skin disease website himself, were he documents all kinds of skin diseases, including demodex. (Which tells me that he has a passion for dermatology.) Although I didn't had a clear oozing lesions, so he couldn't tell much, also based on the photos, he couldn't give a clear diagnosis, although he did say it could be a combination of things.
Different dermatologists have different approaches of solving problems, some like to experiment easily and use a trial and error approach with medication, some take their best guess and follow the standard treatment for that guess, and some like to examine and base their actions on what they clinically observe. My current dermatologist probably falls in the last category.
Because of Soolantra, I didn't had lesions that I could associate with oozing, (although I did had some frustrating nodular acne pustules that suddenly appeared about two weeks ago, and were slowly subsiding. Still wondering whether this may be somehow related.) But he did took a sample of a white head on my forehead on a glass slide for microscopy.
Like the author about demodicosis, he said that due to the anti-inflammatory actions of Soolantra, it would supress the symptoms. So I have to stop using it, to get a oozing yellow lesions back, and then he can examine samples of it. Fortunately, he said that I can go back to the clinic within a day without making an appointment.
With some luck, maybe Soolantra really killed the cause and there won't be any new lesions. I'm planning to stop with Soolantra on Tuesday.