Main topic - Oozing Yellow Crusts


#45

Welcome. I am happy you found us. I, too, for two decades thought I was the only person living through this terrible nightmare. I am happy you are trying the apple cider vinegar treatment. I, too, tried this buy it laid waste to my skin and it was so bad that I would not have been able to continue to go to work and support my family. I would love to have a few weeks or a month to try and see if I could go the distance with ACV. You might find some real useful info on people’s victories and defeats with ACV here: http://www.earthclinic.com/remedies/acvinegar.html and also http://www.acne.org/vinegar-as-a-topical-reviews-30/

For about 9 months, I’ve put a lot of time, effort and money into going the natural route. I’ve seen naturopath/holistic doctor a couple of times and tried different remedies. I’ve also had all my mercury fillings removed from my teeth. I’ve trimmed my diet down to no dairy, no white grains, no red meat and no nightshade vegetables. These are a lot of the protocols used in treating eczema/psoraisis but they don’t seem to help me with the dreaded yellow ooze and my skin is still super dry no matter what I do. I would love for a natural remedy or a diet change to cure me of this curse, but I don’t believe it can happen. I think for most of us, there is something that genetically predisposes us to the yellow ooze. Next Monday, I am meeting with a dermatologist to begin taking Soolantra. Since I have the problem very severely on my eyelids, I may try taking it orally also if she recommends it.

We are all happy to have you on board. No one can understand the nightmare of yellow ooze better than us. Please share your progress and ideas.


#46

I’m also currently doing the oil pulling thing. Really I’m willing to try anything at this point. I’m attempting to get a prescription for the Soolantra and the internal ivermectin med. no luck yet. I called my doctors office acouple days ago with a request to give this route a try. The nurse called me back and pretty much had never heard of demodex or any skin condition possibly caused by it. She said she would pass the message along to the doctor. No call back yet… In the meantime I’m trying all these natural remedies. I should correct my earlier post. I’ve had this for more than 10 years now that I think about it. More like 15


#47

@misfit108 note that Soolantra did remove my eye lids problems (mild blepharitis) even though I wasn’t applying it on the eye lids.

@Dm78 doctors are probably reluctant about demodex treatments when the patient mentions demodex, because 1) they often don’t much/anything about it and 2) it’s pretty easy for a patient to blame demodex for a skin problem.
If your doctor isn’t easy in prescribing meds, than it may be easier to get a prescription when you only ask for Soolantra instead of Soolantra+oral ivermectin. Also note that oral ivermectin may not be very effective compared to oral metronidazole (although the later has more side effects). Also, Soolantra (topical ivermectin) may maybe also be more effective than oral ivermectin, although this is just a rough guess, but an oral med may not necessarily be better than a topical one.

To convince a doctor to prescribe Soolantra, I would try some argumentation like this:

  1. We (you and the doctor) don’t know what it is (if the doctor cannot give a clear diagnosis), there may be multiple suspicions, but…
  2. nothing really worked; I have been given multiple prescriptions without any success
  3. but now I finally found a resource on the Internet that exactly matches the problems that I have, the photos are exactly the same, there stories are the same, which I haven’t seen before on other medical websites. The patients on that resource have seen dermatologists and those that have been given Soolantra/oral-ivermectin/oral-metrinodazole have a high success rate.
  4. I don’t know whether this will work for me, but given the large resemblance of what the other patients have described and shown, and the high success rate that they had, I would at least want to give it a try.

Maybe it’s even better to not mention demodex at all, because it may trigger alarm bells that the patient is simply blaming demodex for it, or that the patient has some mild form of delusional parasitosis.

For more info about the treatment, see The Best treatment


#48

What part of the country do you live in? We might be able to help you find the right doctor.

Where I’m at right now, my primary doctor doesn’t know anything about demodex. But she is backing up the fact that I have done research and that I’ve collaborated with some people online who have the same rare disease and who are seeing results with Soolantra. I have been referred to a dermatologist next week. If the dermatologist is not willing to give me Soolantra, the primary said she will prescribe it to me. In my case, I can present the facts that I’ve tried absolutely everything except Soolantra. You will face doctors who won’t give a prescription because it would mean that you, the patient, know more than they, the highly-educated doctor, know.


#49

Hello! I would like to recall my own experience about tea tree oil mixed with moisturizer !
Like you the first week I was seing an improvement, but later it got worse and worse!
The skin finally got more irritated and more oozing than before!
So just an advice, beware with this :wink:


#51

Did this worsening involve oozing yellow crusts? or only irritated skin?
Did you mix it yourself? Under what concentration?


Gluten free ? or a treatment with honey?
#52

This worsening involved both oozing yellow crusts and red/irritated skin!
I mixed it by myself: one drop of tea tree oil every morning in my moisturizing cream.
Bad idea :wink:


#53

I have to agree. I did a 1:2 ratio of tea tree to jojoba oil. My face exploded. I endured it for about a month, but I was ready to drive my car into a wall almost every day I was that stressed. As soon as I stopped the tea tree, my skin became the best its ever been for about a week and a half before the oozing came back.


#54

I live in Western NY. I have been referred to a different dermatologist than I went to previously. I’m trying to avoid going to the dermatologist again because it takes months to get in and it is crazy expensive.


#55

Ok you guys are scaring me. I had such high hopes for the tto :disappointed_relieved:


#56

It shouldn’t be this hard to get a doctor to listen to us / me. I guarantee I know more about this condition and what could possibly cause it than this nurse practitioner (she isn’t a docor actually). I research this stuff like its my job.


#57

Everyone’s skin is different. Some people have luck with apple cider vinegar and tto. Some people swear borax and hydrogen peroxide taken internally and applied topically can beat it. We all have to conduct our own trial and error experiments.

Would love to hear your full history with the yellow ooze… how old you were when the problem started. What triggers you’ve identified. Feel free to share it if you’re comfortable.


#58

I also had a bad breakout when using pure tto, but it should be diluted (as the others did).
There is a theory that killing demodex will result in a temporary worsening/breakout, but the difficulty is that you don’t know whether this is the case or whether it is really an ongoing worsening.
If it is an ongoing worsening, then the question is what is causing this worsening. One hypothesis could be that it (tto in this case) is weakening/aggressive on the skin possibly causing the problem causing bacteria inside demodex to be able to take advantage on the weakened skin.
It could also be a combination of these hypothesis…

Although those that used topical Soolantra and got good results, often don’t mention a breakout.


#59

Hey guys,

Sorry for the lack of updates. So the soolantra definitely reduced my problem down a lot. Breakouts are not daily anymore and if so its small and heals fast without anymore oozing. The only issue from now is that my brother is now displaying the exact same symptoms.

The last time I had mentioned to my last dermatologist that I think my condition is contagious is because my brother was showing signs of some similar symptoms but no way as bad as I was having. Now today he has a red bump that formed a wound oozing a clear yellow fluid.

It’s very concerning to me now. I feel as though when I run out of soolantra this skin problem will come back because I tend to not use it daily any more, every 2 or 3 days as by the third day I start breaking out again…

I tried to change my diet but to be honest it only lasted about a week and I went back to my old ways but much worse, much more smoking and drinking etc which I need to change to see if healing through my gut might change anything but that takes time.


#60

Here are some things to consider. It’s probably not contagious, it’s just that you and your brother… like many of us are genetically more likely to have this problem. I’ve been married for 12 years and neither my wife nor my kids have ever had even the slightest sign of this disease.

I think you’ve got to do your own tests as far as diet works. I’ve read things where people heal similar conditions by changing their diet. I tried eating only fruits, veggies, white meat and brown rice forever. It doesn’t matter. My skin is still dry and crumbly and always breaking out. If I don’t put lotion on right away, my skin looks like a mummy right away. But you have to walk through the fire of trying diet restrictions to know what will work for you. I’m just starting Soolantra now and if it keeps the oozing down, I will keep putting it on every day. I don’t know how people in the past have lived their entire lives with this condition. It can drive you insane.


#61

Maybe your brother should also use Soolantra?
Also make sure that he really has something that is similar to our photos and descriptions, and that it’s not a slightly different form, like impetigo.
Just in case, you may want to minimize the use of shared towels, bedding and such, and was hands regularly.

About diet, having a bad diet may make the symptoms worse, although I haven’t seen a clear relation in my case (maybe the symptoms are delayed for some days, making it difficult to make a clear relation). But I do think, based on my own experience, that a bad diet has effect on acne. (Note that I have a normal/healthy diet, with maybe one junk food day per week.)

Some questions:

  1. Looking back, do you think that metronidazole has any effect, or difficult to say because you were using Soolantra at the same time?
  2. Does your brother live in the same house?
  3. When did the first symptoms appear at your brother? (Before or while using Soolantra?)
  4. When did you stop using Soolantra on daily basis and started skipping some days?
  5. If I understand you correctly, when you stop using Soolantra, you are getting breakouts again/increase in symptoms at about the 3th day?

#62

My skin is currently very good, zero lesions, not even small ones, and almost no acne.
I try to reason about it, but it’s a unclear what caused this improvement. It may even be temporary or just by chance, so I can’t make good conclusions yet.

At the moment, I attribute it to: Soolantra followed by a oral antibiotic amoxicillin/clavulanic acid and povidone-iodine soap, and possibly combined with not using a moisturizer at all. When using these treatment individually, I was unable to get the same results, only when combined or used in a short sequence. (I started with amoxicillin/clavulanic acid shortly after stopping with Soolantra, and about halfway started using povidone-iodine soap.)

For those who are looking for a face wash and want to experiment, you may want to give povidone-iodine soap a try. Mine has a concentration of 75mg/ml, but I’m not sure how to translate that mg/ml concentration to the percentage value concentrations that most US products use. I think it would be about 7.5%, whereas most povidone-iodine products are at 10%.

So that would be something like this:

The more common 10% would be for example: (Added here because of the higher number of reviews.)

One side note: it should not be applied on a large area, because it may stimulate the production of thyroid hormone.


#63

Hi Tso. This is Col from the Rosacea Forum. Firstly, thanks so much for creating this great site and all the effort you have put into trying to find a treatment for this condition. I am still using 50% TTO with a base of coconut oil. Things have been pretty good with no oozing, crusting for many months. I still get the occasional lesion but these are few, smaller and do not ooze. Then, this week, I got a larger lesion that did ooze a little. It’s the first one in a long time. I’ve also been getting more pustules, I’ve had a bit of flu recently and I’m wondering whether that had any impact. I also deviated very slightly from my routine of washing thoroughly with Dr. Bronner’s Tea Tree Pure-Castile Liquid Soap twice daily followed by application of the TTO solution. I’ve been following that since June. How are things going with the Soolantra? I am thinking about trying this. The cost has been putting me off as I think it costs about $200 in Canada. TTO is much cheaper. It sounds like you have made great progress and the success stories are encouraging.


#64

Col. have you seen the alternative to Soolantra on the roseaca forum? I am currently doing this and I think I’m seeing some good results.


#65

Hi Col, good to hear that you like the forum :slight_smile:

When people try TTO, I usually see either posts with positive results, like yours, or people that get a breakout and quit (like me). (A breakout may be a temporary die-off effect, but continuing with the posibility in mind that it only gets worse, is hard.)
I also have Dr. Bronner’s Tea Tree Pure-Castile Liquid Soap (among with other TTO products), but cannot really comment on whether it was good/bad for me, I used it too short. Although there may be two version of that product under the exact same title, because the ingredients list of mine seem to be longer than some others that I see in online images. (I think mine doesn’t have much TTO in it.)

I’m not using Soolantra anymore since 17 December (I think), because my new dermatologist wants to take samples from an active lesion. Soolantra has cleared my face up a lot, to the point that it allowed me to go outside (work, street, friends etc) without the worries that I had before. But suprisingly it didn’t fully clear me, which does make me wonder whether it was the anti inflamatory property of Soolantra that cleared my face, or it’s anti demodex property.

But I noticed a very bad throat infection the next day (I think it was infectious mononucleosis). (Just coincidence, because it was probably already there before I stopped using Sooolantra.) Then I got antibiotics for it, because the GP thought it was bacterial, althought he couldn’t give a good argument. This antibiotic (amoxicillin/clavulanic acid) gave me a complete clear face during the use of it, and also removed acne and mild scalp folliculitis. After the treatment, I got about two middle sized oozing lesions again, probably about 5 to 7 days after the antibiotic treatment. But, those lesions were the last I have seen so far. I’m currently clean (not even small lesions), since maybe 8 January. It’s still to early to consider myself (temporary) cured, but something (or a combination of things) did something, it seems. I’m currently only using povidone-iodine soap as a face wash and a shampoo.
At the moment I think the positive effect was caused by the combination or sequence of Soolantra, amoxicillin/clavulanic acid and povidone-iodine soap. Maybe also combined with the oral use of high quality manuka honey; not using a moisturizer; maybe a also omega 3 supplementation; I’m also drinking a bit more tea now. The problem is that when I used those products individually, they didn’t fix it, so I don’t know my skin is good at the moment.