I’ve taken the leap and started on Rosiver cream on March 15th. Rosiver is the brand name for Soolantra here in Canada. It cost $200. I apply just before bed after showing. In the morning I am applying the TTO mixture after washing again. For the first few days there was no noticeable change and my skin was great. I only had 4 or 5 tiny bumps. My skin has deteriorated yesterday and today (day 8 and 9) with more pustules. I count about 18 pustules. I have 6 larger pustules. The rest aren’t significant. The nature of the pustules has changed. They itch more and are a little larger but don’t really ooze. I’m sticking with it because something is changing and I think it is die off. I’ll keep you updated on progress. Still hopeful that this treatment will work for me.
In my situation, my skin got better when I scrapped the TTO altogether. I wanted to know if the Soolantra was what healed me and not a combination of the two. I’m no doc, but I’d recommend stopping the TTO as it might be counteracting or defeating what the Soolantra is trying to do. That was what I did and things worked fine. From the first day I did that, I never got another ooze monster. Just some raised, red bumps.
Hi, everyone. I’ve migrated over from the rosacea forum, where I’ve posted as adent3742. Quick summary:
In late 2014 (age 38), I started to get little bumps on my face. They looked like acne, but wouldn’t pop. They’d go away after a few days, so I didn’t worry about them, but thought it was weird.
Then in early 2015 they started to break open. They’d expand until either the top came off or there was a hole, then they’d leak a clear-ish fluid that piled up into a bright yellow crust, like this:
I went to a walk-in clinic, where the doctor prescribed Fucidin. This did nothing. I went to a derm, who tried doxycycline, metrogel, and apo-minocycline, with no better results. Ciprofloxacin cleared my face up while I was using it, but I couldn’t stay on antibiotics indefinitely, and the lesions came back after my prescription ran out.
I then went to a naturopath, who thought it might have something to do with the flora and fauna in my gut. I went on a strict anti-inflammatory diet for a month while taking a probiotic, fish oil, and Quercetin. I lost about 20 pounds of fat from the diet (yay!), but didn’t have any success with my face, so that’s a dead end.
I’m currently washing my face and hair with Paul Mitchell Tea Tree Shampoo, and applying a blend of tea tree oil and jojoba oil before bed. I still get new lesions every few days.
I’m allergic to nickel, to the point where I’ll get a rash from my belt buckle. Apparently a small percentage of people with a nickel allergy can have a skin reaction from food with nickel. Well, guess what? Everything has nickel in it, but especially vegetables. So for April I’m trying a low-nickel diet that eliminates salads, chocolate, whole grains, nuts/seeds, etc. There’s a lot of controversy about which foods are low-nickel, but I’m generally sticking to potatoes and rice for my starch, red peppers for my veggies, chicken for my protein, and white bread/cheese or popcorn for snacks. Any diet that lets me eat popcorn and white bread but not salads is okay by me. I don’t expect this to do anything, but I can’t get in to see my derm again until May, so this gives me something to do in April.
Thanks for starting up this form–it’s a great resource!
Update: I did got two new lesions a day of 1 or 2 after my previous post at Feb 25. Similar results in March.
So I’m still not fully/completely healed, and I’m not sure if it can on the long run, but the frequency/occurence is just very low, instead of daily new lesions it’s more like 3 per month. Which is, in terms quality of live, a big difference.
@col, good to hear that you have Soolantra. Hope it will work for you.
@adent3742 thanks for sharing the photos and info. I’ll link them from the photos thread.
Interesting that Ciprofloxacin temporary cleared your face while other antibiotics didn’t. In my case the antibiotic amoxicillin/clavulanic acid also seemed to clear my face temporary (or reduce the problem). When googling, your are mine antibiotic are often compared together, so they often seem to be used for the same purpose.
About the nickel allergy, if the problem is caused by nickel, than I wonder why you didn’t have the problem before two years ago.
You should give Soolantra a try. It seems to help for most of us. If, for whatever reason, your doc doesn’t want to give Soolantra, but wants to try another antibiotic, then I would suggest to give amoxicillin/clavulanic acid a try. In my situation, it’s a unclear how much the positive effect of it exactly was, because I was using multiple things, but it may be large, but Soolantra is probably the first thing you should try.
So my skin has definitely calmed down since i started posted about using soolantra etc. compared to when I hadnt been using it. I used soolantra every day at first, then it calmed down I only used it on lesions that would appear.
Today, I recently ran out of soolantra (I gradually really slowed down the use to about once a week) and my skin problem is still there but in no way as severe as it was before. But, when I do get a lesion, I have started experimenting with other topical solutions.
This one might not be for some, but ive been using coconut oil infused with cannabis as a topical solution for my face. I got the idea while watching a video clip about a man named Rick Simpson who used cannabis oil to cure his skin cancer lesions, so I decided to research on cannabis topical lotions. I made some infused coconut oil and very lightly applied it to my face, and any lesions. I noticed the lesions would not get as inflamed as they would, and it would actually decrease the inflammation. The healing time definitely was increased, a large lesion I had the other day was pretty much unnoticeable the next day. I generally feel it keeps my skin tame from these lesions and not inflamed.
Please be aware though that topically applying cannabis infused coconut oil MAY have some psychoactive effects and WILL if ingested (although its 100% harmless and actually beneficial to the body) so please do a LOT of research on this, theres plenty online.
But yeah, I am going to keep trying this and see if the effect is consistent.
PS. I also wanted to ask - do any of you live with dogs or any other pets?
The last time I used Soolantra was in December, and a couple of times afterwards on a few lesions. Followed by a 1 week amoxicillin/clavulanic acid antibiotic treatment for an oral throat infection that I got, and then the use of povidone-iodine soap as a face wash. My skin was a lot better than before the use of Soolantra, but I still got a few lesions (small-medium sized), maybe once two or three times a month.
Recently I changed from using povidone-iodine from twice a day (morning and evening) as a facewash to once a day. Twice a day was drying out my face in the first hour after use, but since my skin was stable and I didn’t got the lesions very often, I kept using it. Now that I reduced it to once a day in the morning, and doing nothing with my face in the evening, my skin has further improved. Although switching from povidone-iodine to a very mild Cerave facewash or doing nothing with the skin, seem to give less good results.
So skin hydration is may also be important, or natural hydration by not washing it too much. Maybe some ingredients in fashwashes or moisturizers may also cause problems.
I’m not sure if this causes any improvements in my skin, but since February, I started doing fitness with heavy weights, which may have some effect on the skin.
@RecoverE About dogs, I was in regular contact with a dog about a bit more than 1 year before I first noticed that I had the strange skin problem. But possible had it earlier than that. So I can’t rule out whether it was caused by the dog.
This woman also has a dog: TV show “The Dr’s” discuss women with chronic, untreated skin condition
I have a dog, but have lived in different places with many years without being anywhere near a dog. Personally, I can rule out the dog factor for myself. It’s possible that’s where we picked up the demodex, but I don’t think the dogs themselves give us the reaction.
I haven’t had a single outbreak since early January. It’s simple. I wash my face with cerave or whatever soap. Use Soolantra at night. Use extra virgin coconut oil as moisturizer and nothing else.
TSO, I’ve lived in east coast humidity and I now live in the desert. So I know both climates well. For me, if I don’t put moisturizer on within a minute or two of getting out of the shower, my skin starts to turn into a dry wasteland. It happens that quickly and its the same in the humid climates and the dry ones. Especially worse in winter.
From what I understand, an underlying predisposition to diabetes can cause excessive dry skin like this. Or maybe we’re just born with bad genes. Don’t know. I’ve never seen anyone else with skin as dry as what I get.
I’m updating about my situationl. Still not using soolantra yet and had once again a really long time without outbreaks; like 1.5 months. Now it’s coming back slowly. I’ve noticed that it has come back when I ran out of my normal moisturizer. I had to use another one, really more thick and richer. And it came back with that at the same time. It looks like moisturizer cream is feeding the demodex… The best result on my skin is when I use the least possible moisturizer (for normal skin) ; after I wash the face with cold water on the morning. It looks like the skin is the best when you let it accomodate itself. Meaning not washing too much and putting the least products on it. You should give this moisturizer a try, it’s killer !! It’s called eucerin ultra sensitive. I think I’ll still use it once on soolantra, if it dries too much my skink. Good luck guys
Hi all, just an update. I followed advice and stopped the TTO and just continued with the rosiver cream. This really seemed to help matters. I’m 7 weeks into treatment and not had anything oozing in over a month. My lesions are much much fewer, skin is smoother and less dry, there’s no more itching and stinging, the redness is much less and I’m a heck of a lot happier. Sometimes days go by without any bumps which hasn’t happened in 5 years. When I do get a pustules they usually disappear in a day and they are small. It’s expensive stuff but rosiver is definitely working. I would recommend anyone suffering from this to give it a try because it really has made a huge difference for me.
I’m starting my program today. Fingers crossed! The program consists of:
Full-body application of Nix Dermal Cream with 5% permethrin. I’m going to leave it on for 24 hours, then take it off in the shower tomorrow. This is a one-time treatment.
Oral Metronidazole, 500g twice a day for two weeks. Took my first pill this morning.
Rosiver (1% Ivermectin cream) applied once daily, in the evening. I’ll do my first application tonight.
I’m hoping the permethin kills off a lot of the Demodex, then the metronidazole and Rosiver keep them from coming back. My lesions have decreased in frequency and intensity since I started using TTO daily and avoiding ice cream, but I still get new ones popping up every 1-3 days. I’m hoping this program makes a difference. I’ll keep you posted.
That’s great to hear, Col! I’m starting my Rosiver prescription today. How have things been in the last two weeks for you?
I have also tried topical permethrin, but I don’t think it did much with demodex. Also I don’t think it’s a safe product to use (when used frequently), in my case it gives me temporary mild muscle cramps/fasciculation/twitch in the face, probably due to its neurotoxicity.
The oral metronidazole and topical ivermectin is probably going to help you the most, although it may be difficult to differentiate which one did causes which positive effect.
The Rosiver is working wonders for me. I apply in the evenings only and now in week 10. My skin has been 99.9% clear for 3 weeks now. I get the occasional minor blemish. I wouldn’t even call them p&ps because they are so small and insignificant. There’s no oozing or anything like that. Redness is diminished, there’s no itching, skin is smooth and I feel like a new man. I really hope you get results as good as mine. You may find things go on a 2 week cycle but each cycle things improve. I stopped the TTO after 10 months as it started to lose its effectiveness. Now I’m only using Rosiver. Fingers crossed for you!!
I’ve stopped with the TTO and been using the metronidazole and Rosiver for a couple days now, and I’ve had the worst breakouts I’ve had in a long time. I haven’t had large, weeping lesions like this since I started with TTO. I’m really hoping this is just a die-off phase. My skin doesn’t react well to being covered, so maybe this is just something that’ll always happen when I have to leave a cream on overnight.
Is this initial reaction to Rosiver normal? If so, how long does it last for?
Could be a die-off phase, or maybe an allergic reaction. You could try to also apply some on your arm, to see how skin responds over there.
In my case a noticed a mild redening of the skin and more breakouts, but those breakouts were small and wide spread over the face. It’s hard to recall but maybe it lasted a couple of days or a week in my case before the redening became less.
Consider just using rosiver. I don’t know anything about metronidazole. A lot of us see results from using soolantra/rosiver exclusively and a good skin lotion like cerave or just coconut oil. Maybe the two are not working well together. From the day I started soolantra/rosiver, the lesions stopped. There was about two weeks of red, raised bumps but no weeping. Then that phase went away completely and I’m almost human now.
How is your situation now, any improvements?
Yet another sufferer here. After so many internet searches, looking for my own diagnosis, finally stumbled upon this - so now Im joining the conversation. Heres my story:
Im 27yo and as far as I can remember, I first started getting the oozy spots when I was a sophomore in college… so… 8 or 9 years ago. I remember that because I remember the first time I had to miss class due to my horrific face. I saw the school doctor back then and he told me it was acne, prescribed me Finacea. That did nothing to help but it did also make my skin red and peel.
For years after that though I mostly just dealt with it. Like everyone else, I learned pretty quickly that nothing was going to make it stop oozing. I remember the early years of constant wiping and oh… the time I tried to blow dry my face because I thought maybe I could make it dry out before the yellow crust got any bigger! [that didnt work!] So, the fastest path to healing was just to let it scab over and not touch it.
I noticed over the years tho a strong correlation with dry skin. I have exceptionally dry skin on my face. If one drop of water hits my face, when the water dries my skin will crack and peel. I fear the rain, pools, and beaches. I’ve had the best results over the years by just being extremely diligent about moisturizing. But the puss still comes. I can never stop it completely. And certain situations make it much worse, such as airplanes. For years I hated airplanes because I knew I would walk off the plane with an outbreak, no matter how much moisturizer I used. But planes are exceptionally drying environments.
Then, about a year and a half ago, I was playing with my friends kid and put some paint on my face. It dried and my red turned red and swollen and within 24hrs my entire face had erupted in the worse oozing puss spots Ive ever had. I was basically a monster. Small children starred at me in the street. During that episode my derm told me it was impetigo and prescribed me Cephalexin and Mupriocin. They cultured my nose and I had staph. The most horrible breakout Ive ever had cleared up within 24hrs with these meds and I hailed it a miracle. One week after my cephalexin prescription ran out, the ooze spots came back. I went back to my derm and she told me to start rubbing Mupriocin around my nose every day, twice a day, for 1 week every month for 6 months. My husband did it to. The ooze spots persisted. [And by the way, my husband, nor anyone else Ive ever known, including all my past boyfriends, have ever had this, so I was always skeptical about impetigo which is highly contagious]
Then a few months ago I finally said ‘enough is enough’. I went back to the derm. I tried another round of Cephalexin and Mupriocin but this time I got puss spots while still on the meds. Also, my nose culture came back negative for staph this time. My derm recommended me for a special monthly meeting of derms from all over the area to work together on “tough cases”, aka medical mysteries. I spent a whole day talking to 30 different doctors and everyone came up guessing - acne, zinc allergies, rosacea, the whole gamut, but no one really knew.
So we decided to treat it as rosacea - I started Doxycycline and topical Metronidazole. The pus spots have kept coming, now worse than before, and in the meantime my face has turned red and swollen and painful and is peeling, which is maybe why the puss spots are worse.
Anyway, thats my story and here I am now. Guess Ill go back to the derm and ask to treat it as demodex, based on everything Ive read here. I know this echoes what so many have said before, but it is nice to not feel so much like a ‘medical mystery’ anymore.
Thats me with a mild outbreak:
Your story breaks my heart because it is exactly my same story. Doctors for years calling it impetigo. Mayo clinic even prescribed me leprosy medicine as a shot in the dark.
Cutting all citrus out of my diet helped slightly, but not much. This all started when I was 17 and didn’t let up until at age 38, I started using Soolantra. It costs $300 for a tube. I don’t even put it on my whole face, just a little between my eyebrows and through my eyebrows and to the sides of my nose. Then I apply coconut oil as a moisturizer and use nothing else.
I have the same dry skin problem as you, which may or may not be sjogren’s syndrome. My eyelids are so dry that I cannot use cell phones, for it causes my eyelids to break out. No joke. Even though I don’t apply Soolantra to my eyelids, using it near my eyes has improved my eyelid symptoms a lot.
Soolantra has given me my life back. You’ll see similar results from others in these posts. Also youtube search Jennifer Brown Soolantra.
I wish you the best of luck. You have nothing to lose by trying Soolantra. A dermatologist can give you a coupon or get it from the website, but it gives you the first prescription for $20 or something like that.
Best of luck. Communicate your results with us if you see some success.
Thank you for sharing your story. Also interesting things you mention about the medications you have tried.
It’s still unclear what the exact cause of the problem is, although demodex is a suspect, but there must be another factor involved because basically everybody carries demodex and not everybody has our rare problem. (Also, a lot of people carry Staph and don’t have our problem. Although even demodex has been reported to be able to carry staph.)
But Soolantra (topical ivermectine), which is primarely used to target demodex and also has anti-inflammatory properties, does help a group of people here that tried it (except the results of @adent3742 are not yet reported).
So like @misfit108 says, I would suggest to ask for Soolantra. Even if your derm doesn’t belief in the demodex theory or isn’t able to find demodex, given your long history without much success, and given the positive results others here have reported, they should at least give Soolantra a try.
I would also like to suggest the use of a povidone iodine solution of about 7.5% iodine as a face wash: Main topic - Oozing Yellow Crusts
Note that some of those products mention “scrub” but it isn’t like a facial scrub, it doesn’t contain hard particles.
As far as I know, I’m the only one here that is using it, but I think it does seem to have a positive effect on my skin. Also povidone iodine is a well known antiseptic in the medical world, for cleaning the skin and wounds from bacteria and yeasts.
I would like to suggest to use it once a day as a fash wash, and not using other products to wash the face, so wash the face only once a day, otherwise the face may get drier.
Apart from only washing the skin once a day, you could also try to take short showers, like 5 minutes, using a mild-warm water temperature. Make sure the shampoo doesn’t flow over the face, and don’t wash your face under the shower. Warm water causes the pores to open up, which can result in dry skin.
Not sure if it really helps, but I try to avoid the use of towels to pad my face to after washing it. Towels may contains irritating substances left over from the washing detergents, and they may contain bacteria when not replaced daily. So I use a paper towel every day to pad my face dry.