Hello !
I’ve discovered this site some days ago and was happy to learn that I am not the only one with this rare condition and there is hope in numbers.
I went to at least 5 dermatologists that are some of the best in my country and got diagnosed with Impetigo, Seb Derm, Rosaceae, Acne, Facial Herpes.
Tried for 3 years different antibiotics creams natural treatments inside/outside every thing under the sun. Nothings works even tried carnivore diet witch helped but did not cured it. Perfect diet and jogging/fitness all wellness that you can think of, did not cured it.
Tried different tests for autoimmune diseases, blood tests, Hashimoto’s… I have a big file with everything i had tried but nothing worked, just helped a bit or make it worse.
Tried Metronidazole locale for 2 months still got yellow oozing crusts, Soolantra for 2 months and it was better ofc but did not cure it.
1 of the doctors told me she is sure it’s facial Herpes but I did a DNA PCR test swab from one of the pustules and it turn out negative, when I did the blood test instead it went positive for type 1 oral but I never in my life had a cold sore anywhere on my body so I am not sure what to think, with this occasion I discovered that I have antibodies for herpes but half the population has it so I don t want to believe in it…
But I got paranoia and though that my wife cheated and I did not know and it got to me… did every single blood test and urethral secretion test there is starting from SIDA, Syphilis, Gonorhea to Urine tests everything… lots of money but all negative.
One doctor recommended Accutane but I am scared of it to be honest.
Now I am using some natural creams with active ingredients formulated in a lab and got rid of my seborrheic dermatitis from my head and eyebrows for good = 2 years free, and this god awful disease that looks like rosacea I am keeping at bay with a water base gel with some acids and natural compounds, wash every night then apply cream with some metronidazole Sulphur niacinamide and something else and that s it, in the day I don t wash at all because I found that my sebum provides moisture and protection, is only at night that sebum is filled with dirt and dust etc that needs to be rinsed cleaned.
With this schedule I now have 1 yellow pustule a month lets say witch heals in 2/3 days rather from 1 a week that heals in 4/5 days.
The best things that really helped in order of importance for me:
- Less stress
- Soolantra
- Metronidazole/Sulphur
I want to ask you people so I can make a correlation and continue working on this, because my father had a similar thing going on but his pustules were painful and red and sometimes blood would come out and I got him to try some lab formulated creams and now he is free of it so it gives me hope to keep trying. So here are my questions:
- Your parents have some type of autoimmune disease? like diabetes etc (Genetical factor)
- Do you have big stress in you life? (chronic stress actually - hate job - hate partner etc)
- Do you have Herpes? (blood test type 1 or 2)
- What blood type are you ?
- What does your diet look like? (clean or hectic)
- Do you have other skin conditions on face besides this one ?
- Did you suffer a trauma in your life that is linked to the debut of this disease ?
- Are you doing sports sweating a lot ?
- Are you changing your sheets pillow clothes as normal ?
- Do you have/had an untreated sex disease or had multiple partners ?
Thanks for reading this much, sorry about my English and I really hope we can unite and destroy this thing for good!