Heeelp!


#1

I have been struggling with this for a little less than a year now. I am a 27 year old female and never really struggled with acne besides the occaisional break out here and there during my menstral cycle. I have gone to numerous dermatologists and all came to the conclusion it was acne, which I can tell you it is unlike any acne I have ever seen or experienced before. The spot will begin to itch and then turns into a clear liquid blister. When it ruptures it will ooze the clear liquid and then slowly crusts over into a yellow crust like substance. They range in size, the largest I’ve had is probably a little smaller than my pinky finger nail. I’ve been on numerous medicines/antibiotics you name it. Most recent the doctors had me on doxycycline. I’ve been on it for a month and haven’t seen any noticlable difference. I’ll post some pictures of some of the ones I’ve had. It is really starting to tear me down emotionally and mentally… not to mention financially and I don’t know what to do anymore. I have a derm appointment next week I am going to beg and plead for soolantra because nothing else has worked and it seems people have had success with that. I also ordered sudacrem online and that should arrive in a week or so. I don’t have insurance, does anyone know if soolantra is super expensive? At this point I’ll shell out anything but I’m just wondering how hard it’s going to hit my bank account. I just can’t believe we are all struggling like this and no doctor or dermatologist has ever heard about it! I’m beyond frustrated and upset I’m just trying to stay positive but it’s really hard. And I’ve only been dealing with this for a year, props to you all who have been going through this much longer. I will keep you posted on what my dermatologist says next week. (PS - all of these photos have been over a few month time span. But I did currently just wake up with one this morning)


#2

Welcome to the forum and thank you for sharing your photos and situation.
Your skin problem looks like the classic typical problem that this forum is all about, so you’re on the right place.

I don’t know much about the costs of Soolantra in the US (I assume?). Maybe @misfit108 can tell you something about it? If I remember correctly, someone said something like $200 for a tube of Soolantra. But you can use it for like 3 to 6 months.

If your dermatologist doesn’t want to provide Soolantra, than you could try to show him this: What does it look like? (photos) and tell him/her that a lot of people on this forum have the exact same unknown skin problem and a lot of them used Soolantra with success.

Soolantra is a moisturizer containing the medicine ivermectin, the primary/active ingredient. Some people have just ivermectin from a topical animal/horse product with success. It can be much cheaper (and without prescription), although it may be safer to use Soolantra. For more info, see: Does yours spread? and Cattle medicine is more potent

Topical ivermectine may cause a bad reaction on some people, which is supposed to be a temporary breakout. So you may want to start with it slowly. For more info, see Bad first reaction

I have also used doxycycline for like 1 to 3 months, but it didn’t do anything to the lesions.

Your skin also looks dry/prone. Dry skin may be more prone to the problem than hydrated skin. So you may also want to try: Skin hydration
(It probably isn’t going to remove the problem, but this moisturizer could reduce itch and reduce the occurence of new lesions a bit.)

Can I post your photos in this topic? What does it look like? (photos)
So that people can compare it with their skin problem?


#3

Hi, hon. You’ve got what we got, so know that you’re not alone. A lot of us have been through the same hoops as you. Doctors don’t know/don’t care enough, so they just try different antibiotics. Many years back some doctors experimented on me with plague antidote. They like to just ‘guess’ at things. Soolantra will very highly likely be your ticket to managing this stuff. No one likes paying for it. Even if you have insurance, insurance doesn’t cover it. I don’t remember how much I paid last time, but at the least it was $350. You have to weigh if you want to get your life back or not. Also, when I first started Soolantra the first tube was $20 or something like that. They had some voucher on their main website at that time. Not sure if that’s still available or not. Soolantra is a small tube, so if you slather it all over your face, it won’t last you more than a few months. Once I got things under control (2-3 weeks,) I was able to apply every other day. And I only put a little bit between my eyebrows and down the sides of my nose where the cheeks crease into the nose. Honestly, just a dab of soolantra the size of a single cheerio is enough to cover those regions. And my whole face stays clear from just covering those three spots. I don’t know what will work for you, but I wish you luck and we are here for you. We all have the same thing and you will never find a doctor who knows what it is or can do more for you than give you antibiotics and do pointless tests or claim its impetigo.


#4

I’ve had good success with sulfur cream. But the reality is, you have to get away from what ever is upsetting your skin. My triggers are stress (yay!), sweating, and sugar. So I know if I down something sugary, by the next day (if not sooner) I’m going to have an outbreak. It all starts in your intestines!