Thanks for the replies.
The only reason i dont want to use soolantra again is because I dont want to be dependent on it, especially when it says not to use it longer than 4 months.
There must be some root cause and im determined to figure it out. So far ive seen a lot of dermatologists who cant diagnose it - done swab tests, blood tests, checked my kidneys, MRI scans, nothing. I have an appointment with a gut doctor next week as my endocrinologist for my diabetes said it could be related to celiac disease / candida / h pylori, so i am going to see if any of this could be the case.
Ive found that when i eat a diet with no meat and dairy, my skin problem doesnt go away but it calms down a lot.
This recent bad breakout I think was also due to the fact that my stress levels have been crazy the past 2 weeks, possibly the most stressed ive ever been, and i went from eating a mainly plant-based diet to eating dairy and meat, alcohol, and anything i would have normally eaten as a result from the stress, and here I am now with my skin problem at its worst. I went back to eating plant based 3 days ago, and this morning my skin seems to be getting a bit better.
There have been periods where ive gone 2 or 3 months with really small lesions rarely with no lymphatic fluid, and then times where it just wont go away and is constantly there. I do find though that the times where Ive had long periods of clear skin are when I was using soolantra, seems to get worse at first then clears up, but this takes a couple months and after i reach the 4 months of recommended use i stop using it due to the chemicals etc. and thats when i notice my skin is clear but then it comes back worse after a short while.
So while soolantra does seem like the best option right now for us, Im determined to try find the root cause and my instinct is that it has something to do with candida.
I have been dealing with candida for over 10 years and never got rid of it. Constant athletes foot when i was younger which i kind of learned to live with after it wouldnt go away. I say i think its candida because i get red patches of skin on my body and itch when i drink alcohol, and i have for 2 years been dealing with an itchy scalp which has red patches on it, to the point where my barber always comments on it. (Could be skin pigment but the fact my scalp is so itchy - one of the first symptoms i faced before all my skin lesions - lets me believe it might be candida / fungal.
My diabetes also makes it easy for candida to thrive. Unfortunately a friend of mine passed away last year due to H Pylori in the gut, which gave her cancer, so if it can have such detrimental effects on the body I definitely do want to see a gut doctor to rule these things out and run my symptoms through with them if any of it could be related.
Will report after I go to an appointment.